Contact Us

KrabbeCURES

Contact Us

Sponsor

KrabbeConnect
P.O. Box 264
Rosemount, MN 55068-0264
https://krabbeconnect.org/

Registry Contact

Stacy Pike-Langenfeld
info@krabbeconnect.org
https://krabbeconnect.org/
1-800-800-5509

IRB

North Star Review Board
https://learningirb.org/
info@northstarreviewboard.org

Social Media

Institutional Review Board (IRB)

An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact North Star Review Board at https://learningirb.org.

Visit the National Organization for Rare Disorders home page at rarediseases.org.