KrabbeCURES
Krabbe Community United Research and Engagement Study
KrabbeCURES serves the Krabbe disease community. This is a free platform to share your journey to help improve the outcomes of Krabbe disease.
For more information about how to register, click here.
For Patients
Get Involved
Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the rare disease community.
For Researchers
Drive Research
This is a unique rare disease patient registry. Are you interested in using our data to further your rare disease research?